Category Archives: futile care

Diane Coleman Presents Comments on Futility at July 25 Mtg of National Council on Disability

diane coleman, discrimination, futile care, futility, national council on disability, Our News & Commentary Blog

Many apologies for the delays in getting this out.  Last week, there were many activities and events to mark the 23rd anniversary of the signing of the Americans with Disabilities Act (ADA).  One of those events was a meeting of the National Council on Disability.  Here’s the description and info from last week’s press release … Continue reading Diane Coleman Presents Comments on Futility at July 25 Mtg of National Council on Disability →

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

"end of life", death through denial, dredf, futile care, Institute of Medicine, life-ending decisions, Marilyn Golden, national disability rights network, NDRN, Our News & Commentary Blog, protection and advocacy, Surrogate Decisions & Guardianship

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee →

NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

diane coleman, futile care, futility, national council on disability, Our News & Commentary Blog

The National Council on Disability (NCD) “is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of fifteen Presidential appointees , an Executive Director appointed by the Chairman, and eleven, full-time professional staff.” … Continue reading NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability →

Important Legal Victory for People Under Guardianship in Pennsylvania

"end of life", amicus brief, Art Caplan, betancourt v. trinitas, bioethics, futile care, litigation, Our News & Commentary Blog, Pennsylvania, Surrogate Decisions & Guardianship, Wisconsin

Last month, there was an important legal victory for people under guardianship in Pennsylvania.  The Supreme Court of Pennsylvania issued its ruling in the matter of D.L.H.  This appeal was made by the guardians of a man with developmental disabilities.  As reported in this 2009 blog entry, a lower court severely limited a guardian’s power … Continue reading Important Legal Victory for People Under Guardianship in Pennsylvania →

NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY

betancourt v. trinitas, court decisions, futile care, futility, new jersey, Our News & Commentary Blog, thaddeus pope

I just received this in my news feed.  Taunya English at WHYY aired a piece on the Appellate Court Ruling on Betancourt v. Trinitas.  The case involved the effort of Trinitas Regional Medical Center in New Jersey to remove treatment from a patient over the objections of the family.  Having lost in a trial court, … Continue reading NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY →