Category Archives: Health care decision-making

NDY Comment on Comment on Proposed Texas Futility Regulations

ableism, advance directives, better dead than disabled, ethics committee, futile care, futility, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, public comment, quality of life judgments, , , , ,

July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of … Continue reading NDY Comment on Comment on Proposed Texas Futility Regulations →

Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability

better dead than disabled, Health care decision-making, health disparities, HHS, informed consent, life-sustaining treatment, Lisa Blumberg, medical discrimination, Our News & Commentary Blog, treatment withdrawal, , ,

The updating of the 504 Regulations by the Department of Health and Human Services under the Biden-Harris administration is historic. Various provisions included in the amendment interact and work together to promote equal access to healthcare for persons with disabilities. Not Dead Yet’s response to the  Department’s request for public comment when the updates were … Continue reading Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability →

Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians

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Alexandra is a woman in her forties who has been described as developmentally disabled and has sometimes had problems managing her budget.  She cares about having a conventional appearance and her preference is for V-neck blouses. She unfortunately has early-stage breast cancer, but it could be treated in various ways. She could benefit from having … Continue reading Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians →

Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues

"end of life", aid in dying, assisted suicide, futile care, futility, Health care decision-making, healthcare rationing, life-sustaining treatment, Our News & Commentary Blog, passive euthanasia, quality of life judgments, treatment withdrawal, , ,

Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues by Lisa Blumberg Medscape is an online resource for healthcare professionals. It provides medical news and information and does surveys on current issues. (1) Its 2022 survey of 4100 U.S. doctors on “Right and Wrong in Medicine: Life, Death and Wrenching Choices” … Continue reading Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues →

Lisa Blumberg: Getting Beyond Advance Medical Directives

advance directives, Conversation Project, DNR, Do-Not-Resuscitate, Dr. Ferdinando Mirarchi, end-of-life care, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, supported decision making, treatment withdrawal, , , ,

For years, advance medical directives, popularly known as living wills, have been promoted as giving people control over what happens to them at “end of life”, i.e., when they are in dire medical straits. (1)  It is hard to disagree with the concept. Certainly, people have the right to refuse treatment they don’t find helpful … Continue reading Lisa Blumberg: Getting Beyond Advance Medical Directives →