On September 16, ABC News in Oakland, California reported on a hospital’s threat to remove breathing support from six-month-old Kingston Holmes. The infant needed a ventilator due to a brain injury following a cardiac arrest at home. The first thing I ask when I read a story like that is when did the cardiac arrest … Continue reading Neurology Guidelines Push Back Against “Rush To Judgment” In Brain Injury Cases
Kaiser Health News recently carried an article encouraging people to create videos to help explain what’s in their advance directives, which are often overly complex legal boilerplate or overly simplistic checkbox forms. One thing I like about the article, Straight From The Patient’s Mouth: Videos Can Clearly State Your End-Of-Life Wishes, is the discussion of … Continue reading Supplementing Your Advance Directive With A Video
NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning
[This announcement is from the Autistic Self Advocacy Network (ASAN) and originally appeared on Feb. 2, 2015.] On Monday January 26, the Autistic Self Advocacy Network, Not Dead Yet, and 13 other disability rights organizations filed a second amicus brief in a case defending the rights of people with disabilities to basic medical care. Disability … Continue reading Belated Update on Wisconsin Case: ASAN Files Second Amicus Brief for NDY and 13 Other Disability Groups
Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over … Continue reading NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability
