Category Archives: organ transplants

NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families

brain death, brain injury, litigation, New York Organ Donor Network, organ donation, organ transplants, Our News & Commentary Blog, rush to judgment

There’s a potentially explosive lawsuit that’s gotten limited coverage so far.  As near as I can tell, the first story on it was published in the New York Post on September 26 of this year.  Here’s an excerpt from the news story in the Post: The New York Organ Donor Network pressured hospital staffers to … Continue reading NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families →

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

ari ne'eman, Autistic Self-Advocacy Network, disabilityscoop, discrimination, HHS, national council on independent living, national disability leadership alliance, organ donation, organ transplants, Our News & Commentary Blog

On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation.  Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report … Continue reading Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS →

Update on Amelia (Philadelphia Transplant Denial) With Welcome News

activism, advocacy, Children's Hospital of Philadelphia, medical discrimination, organ donation, organ transplants, Our News & Commentary Blog, update

I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome.  Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys.  They were told by the transplant surgeon that her … Continue reading Update on Amelia (Philadelphia Transplant Denial) With Welcome News →

Action Alert! Speak Out on Proposed Rules for ‘Procuring’ Organs from People with Disabilities

action alert, organ donation, organ transplants, Our News & Commentary Blog, policy, united network for organ sharing

Action Alert: Procuring organs from people with disabilities    Take Action! Comments on proposed rules due Friday, June 15! The United Network on Organ Sharing (UNOS) has issued proposed requirements for organ procurement from people who depend on ventilators or other life sustaining treatment, including people with upper spinal cord injuries and people with neuromuscular disabilities.  … Continue reading Action Alert! Speak Out on Proposed Rules for ‘Procuring’ Organs from People with Disabilities →

Maryland: Using a “PVS” Diagnosis to justify Organ Harvesting Without Consent

Maryland, Maryland Disability Law Center, national catholic partnership on disability, National Catholics Bioethics Center, organ donation, organ transplants, Our News & Commentary Blog, Stephen Mikochik, vegetative state

Today ( Feb. 21, 2012) in the Maryland legislature, the House Health and Government Operations Committee held a hearing on HB 449, a bill to grant health care surrogates the power to donate “non-vital” organs (a kidney or lobe of a liver) of a person diagnosed to be in a persistent vegetative state (PVS). I … Continue reading Maryland: Using a “PVS” Diagnosis to justify Organ Harvesting Without Consent →