Response to RFI – Opioid Public Health Emergency[1] February 20, 2018 We are members of Not Dead Yet, a national grassroots disability rights organization, and some of us are living with chronic pain ourselves. Based on our knowledge of the disability community through personal experience and through our work, we have not seen disabled people with … Continue reading The Opioid Crisis the News Isn’t Talking About
NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning
Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over … Continue reading NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability
Today, November 1st, is the last day to provide input to the Institute of Medicine’s Committee on Approaching Death via their online survey, the subject of a previous blog. Yesterday I took the opportunity to submit the following personal story involving some disturbing communications from medical professionals a couple years ago when I had some … Continue reading Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story
Less than two months ago, I was introduced to a new policy arena about which I still have much to learn: the organ procurement and organ sharing system. In the U.S., the federal Department of Health and Human Services contracts with the Organ Procurement and Transplantation Network (OPTN)/United Network for Organ Sharing (UNOS) to manage … Continue reading Organ Procurement Guidelines, Health Care Decisions and People With Disabilities
