Category Archives: update

Announcement: In Memoriam: John Bryan Kelly (February 26, 1958 – November 14, 2025)

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  Our incomparable disability rights champion, beloved colleague and friend.   It is with profound sadness that we announce the passing of NDY’s singularly dear colleague and incomparable disability rights champion, John Bryan Kelly, who passed away peacefully in Boston, this past Friday, November 14, 2025, at the age of 67.  In spite of battling … Continue reading Announcement: In Memoriam: John Bryan Kelly (February 26, 1958 – November 14, 2025) →

Update on Amelia (Philadelphia Transplant Denial) With Welcome News

activism, advocacy, Children's Hospital of Philadelphia, medical discrimination, organ donation, organ transplants, Our News & Commentary Blog, update

I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome.  Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys.  They were told by the transplant surgeon that her … Continue reading Update on Amelia (Philadelphia Transplant Denial) With Welcome News →

Update on Wagman Op-Ed — Concord Monitor picks it up

life-ending decisions, media coverage, medical decisionmaking, Our News & Commentary Blog, update

I hope this is the end of it, but today’s edition of the Concord Monitor carried Wagman’s essay, using the gentler, but less accurate title of “It’s time to pull out the tubes and allow my father to die.” FYI – Unlike the LA Times, the Monitor provides a “comments” section for this op-ed. Nothing … Continue reading Update on Wagman Op-Ed — Concord Monitor picks it up →

Update: Haleigh Poutre and the Strange Priorities of Massachusetts Legislators

"end of life", haleigh poutre, life-ending decisions, medical killings, Our News & Commentary Blog, policy, Surrogate Decisions & Guardianship, update

Wesley Smith has an update on Haleigh Poutre, who apparently – and hopefully – will be spared having to testify in the trial of her stepfather, Jason Strickland. Haleigh Poutre narrowly escaped the death planned for her by medical professionals at Baystate Medical Center and publicly-appointed guardians from Massachussets DSS. These professionals all signed off … Continue reading Update: Haleigh Poutre and the Strange Priorities of Massachusetts Legislators →