Marilyn Golden, Presentation, Hartford, CT, 10-18-2013

…d safeguards, turn out to be utterly hollow   For example: what we call “Dr.-shopping”   If a doctor refuses to prescribe lethal drugs, a patient or family can find another doctor who will say yes, which gets around a lot of safeguards.   Take the case of Oregon patient Kate Cheney, who was 85. […as described in The Oregonian in October 1999.] Her doctor refused to prescribe lethal drugs, because he thought the request actually resulted from press…

Bill Peace’s Hastings Center Article (on a disturbing hospital experience) and Three Commentaries Are All Online

…discontinue antibiotics and let himself be given palliative care to be pain-free until the infection took him. Below are the links to Bill’s essay, and the three commentaries: Comfort Care as Denial of Personhood by William J. Peace Commentaries/Reactions to Comfort Care as Denial of Personhood: “Disability Discrimination” by Diane Coleman and Stephen Drake – We discuss evidence that Bill Peace’s account of feeling devalued and threatened in a hea…

John Kelly’s Response to IOM Online Survey or “We Love Our Tubes!”

…ilable on the Public Policy section of our website here. – Diane] I am a 55-year-old white man who is a quadriplegic based on a spinal cord injury in 1984. The level of my injury was at the fourth cervical level, resulting in near total paralysis below my shoulders. My breathing ability survived the injury, and after diaphragmatic strengthening, I have breathed without assistance for the last 30 years. I drive a powered wheelchair with a sip/puff…

Apologies and Explanations – Back Online Next Week

…n’t be able to do this.” Stephen Drake is a researcher, policy analyst and organizer. He’ll share his journey of awareness and development of successful strategies — a journey in which his struggles with “deficits” have turned out to be as important in helping him in his work as his strengths. Stephen made his own self-diagnosis as a grad student in Special Education. Since 1998, he’s worked as a disability activist, engaged in public debate, orga…

Time Magazine Article Misrepresents Final Exit Network and Who They “Help”

…ad Yet 497 State St Rochester, NY 14608-1642 585-697-1640 http://notdeadyet.org I have not heard from anyone at Time magazine since I received the reply from Mr. Stengel’s secretary. This is too important to leave alone. You can help. If this seems outrageous and wrong to you, so something about it. You can send a letter to the editor by using letters@timemagazine.com. And if you want to send an extra copy of what you send, I’d love to see them. M…