As of today]}**, Bill Peace]}**’s essay “Comf**{[ort Care as Denial **{[of Personhood**{[” is online – and accomp]}**ani**{[ed by three c**{[ommentaries available at]}** the Hasting]}** Center Bioethics]}** Blog. Here’s]}** wh**{[at we wrote b**{[efore about the experience]}** at **{[the center of Bill’s essa]}**y: Back in 20]}**10, our friend**{[, colleague and ally Bill]}** Peace**{[, experienced a long, exp]}**ensive health]}** crisis when]}** he **{[experienced a stage IV skin breakdown **{[– with a lon**{[g treatment process that]}** was **{[physically an…
…e and I hav]}**e dealt with]}** previously scheduled]}** events that]}** took us away]}** from online]}** NDY matters. Diane is at **{[the INCIL Re**{[treat today.]}** In addition]}**, I committed **{[to do a pres**{[entation at the Fall Confer]}**ence of the]}** Nonverbal Learning]}** Disorders Association]}**. I’m leaving **{[tomorrow and won’t be ba]}**ck until Satur]}**day **{[night. Here**{[’s the blurb]}** for my sess]}**ion**{[, taken from the list of]}** presenters]}** on the NLDA si**{[te: STEPHEN DRAKE, Research Analyst, Policy]}** Analyst and]}** Org…
November 1,]}** 2013 Respon]}**se **{[to Question **{[1: I am a 55-year-old whi]}**te man who is]}** a **{[quadriplegic based on a spinal cord]}** inj**{[ury in 1984. The level o]}**f my injury]}** was **{[at the four**{[th cervical level**{[, resulting in near total paralysis below]}** my shoulders. **{[My breathing ability sur]}**vived **{[the injury, and after d]}**iaphragmatic]}** st**{[rengthening, I have brea]}**thed without]}** ass**{[istance for the last 30]}** years. I drive a **{[powered wheelchair with]}** a sip/puff tu]}**be, live in the commun…
October 31,]}** 2013 Respon]}**se **{[to Question **{[1: I have a serious, pr]}**ogressive neuromuscul]}**ar disability. For most of **{[my life, doctors thought]}** I had spinal]}** muscular atrophy,]}** but now the]}**re’s a DNA test for that an]}**d last year]}** we **{[learned that I don’t hav]}**e the SMA gen]}**e. So now I hav**{[e a generic neuromuscular]}** disability labeled]}** congenital myopathy. I have friends with simila]}**r conditions, as well as]}** friends with]}** post**{[-polio syndrome, many of]}** who**{[m use BiPAP machin…
…ple Against]}** Cuts and No]}**t Dead Yet Ra**{[lly Against Ass**{[isted Dying (morningstar]}**online.com, 04**{[/29/24) New York considers]}** Medical Aid]}** in Dying Act for ninth conse]}**cutive year]}** (WAMC, 04/27]}**/24) Advocates push back aft**{[er Cardinal O’Malley deno]}**unces bill to permit physician-]}**assis**{[ted suicide **{[(Boston Glob]}**e, 04/16/24)]}** Assisted su]}**icide in Minnesot]}**a? Critics po]}**int to Canada as cautionary tale **{[(Star Tribun**{[e, o4/12/24)]}** Think again]}**: the humani]}**st **{[case against assiste…
