…lot about the content and goals of the team by reading this section of the site. Hannah’s purpose in contacting us was to look for “end of life” or experiences about people with disabilities facing the “end of life.” I gave her a shorthand version of the complicated nature of the term “end of life,” which I’ve written about before. Like most people who use the term, she hadn’t thought about just how many diverse situations that innocuous term actu…
…ay, GMA has done its best to make West’s memoir financially rewarding. The site has video, a written story and a book excerpt. Makes me wonder if ABC is already in negotiation for film rights. From the story: For attorney and author John West, his parents were lifelong sources of comfort, wisdom and pride. But West has been keeping a 10-year-old secret about his parents from everyone, including his two sisters, which he is revealing for the first…
…driven web channel enabling exchange of ideas for people with autism.” The site is designed and operated by Kent Creative. The podcast is an edited version of an interview of me that was conducted by Jon Kent, president of Kent Creative. A few words about the interview: My intonation is uneven and my speech hesitations worse than usual – a result of doing the interview while imitrex and a migraine battling it out in my skull. There are a couple of…
…cing the campaign on Thursday via media and will tell them to check the website postings on Monday. The campaign will be posted on Kara’s site. I’m not sure if I’ll be blogging or not on the 3rd. I do my blogging from my office and I am not sure if I’ll be here then. But we support this effort. NDY founder Diane Coleman joined Jerry’s Orphans and started organizing local telethon protests when the group first formed in 1991. A lot of visitors to t…
…nce with its orders when FDA inspectors find something amiss at a research site. The problems discussed in the report are not new. They have been festering for years. Caplan doesn’t give a clue as to just how many years this has been in the making, but I’ll add a little more info. At least some of this slide was well-documented during the Clinton administration, during which the FDA inexplicably expanded “nonconsenting” research at a time when it…
