As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive health crisis when he experienced a stage IV skin breakdown – with a long treatment process that was physically an…
…e and I have dealt with previously scheduled events that took us away from online NDY matters. Diane is at the INCIL Retreat today. In addition, I committed to do a presentation at the Fall Conference of the Nonverbal Learning Disorders Association. I’m leaving tomorrow and won’t be back until Saturday night. Here’s the blurb for my session, taken from the list of presenters on the NLDA site: STEPHEN DRAKE, Research Analyst, Policy Analyst and Org…
…percent of individuals outlived their 6-month prognosis[9] in 2020, 3.8% in 2021[10] and 5.8% in 2022.[11] This does not take into account the individuals who took the drugs quickly but may have survived if they had waited longer. The definition of “terminal” in the Oregon statute only requires that the doctor predict that the person will die within six months. There is no requirement that the doctor consider the likely impact of medical treatment…
…language interpreter. The Advisor: BLS Program will be one year old in July 2021. As of April 21, 2021, 2,781 individuals with disabilities have enrolled in the program. It is not known how many employers or nursing schools have accepted the Advisor Card but NOND does know that enrollment has included nurses at some healthcare institutions where the Advisor card is accepted in place of the standard BLS card. It is also known that people with signi…
November 1, 2013 Response to Question 1: I am a 55-year-old white man who is a quadriplegic based on a spinal cord injury in 1984. The level of my injury was at the fourth cervical level, resulting in near total paralysis below my shoulders. My breathing ability survived the injury, and after diaphragmatic strengthening, I have breathed without assistance for the last 30 years. I drive a powered wheelchair with a sip/puff tube, live in the commun…
