NDY Board Member Rhonda Wiebe in Winnipeg Press: Expensive to Support Disabled but Suicide Kits are Cheap

On July 21, the Winnipeg Free Press published an op-ed by Rhonda Wiebe (see below for brief bio).

The op-ed is a response to ‘ethicist’ Arthur Schafer.  The newspaper published an op-ed by him on July 19 titled “Assisted-suicide slope not so slippery.”  Schafer is a poor choice to deny the existence of slippery slopes.  His name last came up on this blog in connection with his role in the Global News Live Blog event promoting the empowerment of parents and caregivers to be able to kill or order the deaths of children and adults with significant cognitive disabilities.  In essence, Schafer wrote an article denying the existence of a slope that he himself is coating with grease.

Rhonda’s response is titled “It’s expensive to support the disabled — suicide kits are $39.95.”

Excerpt:

The insidious bottom line is this — last I looked, a take-home euthanasia kit in Oregon cost $39.95. That’s a whole lot less expensive than providing someone with the supports they need to cope with the loss resulting from having a disability, and then providing them with the means to get on with the matters of daily living. It’s way cheaper to let people suffer, or cut back services so life is untenable, or subtly convince people with disabilities that they have lives that aren’t worth living. Imagine being inundated with the message that you have a right to end your miserable, burdensome, devalued life, because, really, it’s your choice. Unfortunately, some people with disabilities are starting to drink that Kool-Aid.

Please read the rest of the op-ed at this link.  Taking a few minutes to go through the free registration and leaving a comment would be great, too.

Rhonda Wiebe is a disability rights advocate from Winnipeg, Manitoba. She co-chairs the ending-of-life ethics committee of the Council of Canadians with Disabilities, and serves on the Board of Directors of Not Dead Yet. She has lived with disability since the age of thirteen.

Bill Peace’s Hastings Center Article (on a disturbing hospital experience) and Three Commentaries Are All Online

As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog.

Here’s what we wrote before about the experience at the center of Bill’s essay:

Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive health crisis when he experienced a stage IV skin breakdown – with a long treatment process that was physically and emotionally grueling by his own accounts.

While Bill was hospitalized – and at one of his lowest points healthwise – he was subjected to a late night visit by a hospitalist.  Laying out a grim set of possible outcomes for Bill’s health crisis, the doctor seemed to be urging Bill to just discontinue antibiotics and let himself be given palliative care to be pain-free until the infection took him.

Below are the links to Bill’s essay, and the three commentaries:

Comfort Care as Denial of Personhood by William J. Peace

Commentaries/Reactions to Comfort Care as Denial of Personhood:

  • Disability Discrimination” by Diane Coleman and Stephen Drake – We discuss evidence that Bill Peace’s account of feeling devalued and threatened in a healthcare setting may be just the tip of an ugly iceberg.
  • Disability Discrimination: Risky Business for “Consenting” Adults” – Philosopher Anita Silvers writes that Bill Peace’s account “stirs a familiar feeling of fear” – and one that may be shared by many visibly disabled people.
  • Disability Discrimination: A Doctor’s View” – Palliative care physician Theresa A. Soriano offers Bill Peace an apology for “the fear and alienation” a member of her own profession caused him.  She outlines what the physician should have done, if he wanted to be helpful; things that are standard practice for those competent in communicating about palliative care.

Comments on any of  the essays reacting to Bill Peace’s article  are encouraged, but you have to register – which is a free and relatively painless process.

I’d like to add that the Hastings Center, like bioethics in general doesn’t “do” disability very often.  Reactions to these articles from anyone – but especially folks in the disability community – might make them think the time has come to “do” disability more often.

 

 

 

 

 

 

 

 

 

 

 

NDY quoted in article on New Mexico assisted suicide case

On July 11, the online publication Solutions, “a project of the Buechner Institute for Governance at the School of Public Affairs at the University of Colorado Denver,” included an article by Diane Carman entitled “Doctors, patient challenge New Mexico’s assisted suicide ban.”

The New Mexico court case was brought by Compassion and Choices attorney Kathryn Tucker on behalf of two doctors and a woman with cancer and, according to the article, asks what is the meaning of “assisted suicide”?  Carman begins by asking:

If a terminally-ill patient refuses a ventilator or a feeding tube and the physician yields to that decision, is that assisting suicide? If the patient is in excruciating pain and requests total sedation and no nutrition or fluids, can the doctor be held accountable for his death? What if the patient seeks a prescription from her physician so that when the pain of dying is overwhelming she can seek the ultimate relief on her own?

Throughout the 1980’s and across the country, courts repeatedly and unequivocally answered “no” (i.e. no problem) to the first two questions, but Compassion and Choices (C&C) often raises the specter of being hooked to unwanted tubes and forced to endure unwanted medical treatments when advocating for something completely different than the well established right to refuse treatment.  Despite nearly 25 years of widespread public education about using advance directives to refuse unwanted treatment, C&C counts on people to forget these facts and conflate the issues.  C&C is pushing for the term “aid in dying” to include not only refusing treatment, palliative care, and hospice, but also assisted suicide, rolling it all into one focus group tested phrase.

C&C claims that state laws banning assisted suicide were never intended to refer to doctor assisted suicide of a person given a terminal prognosis.  The article discusses two other cases that have looked at this issue, one in Montana and the other in Connecticut.

Baxter v. Montana was decided by the Montana Supreme Court in 2009.  According to the article, “In a 5-to-2 ruling, the Montana court said that physician aid in dying was protected under the law providing for living wills.”  More accurately and narrowly, the court held that the patient’s consent to assisted suicide would constitute a defense that a physician could raise if they were charged with homicide.  (Baxter v.Montana at page 25 – available at the Court’s website.)  A court or jury would still be able to consider all the facts and circumstances (e.g. misdiagnosis, malpractice) in deciding whether to acquit or convict.

The Connecticut case more closely resembles the New Mexico case in that it considered whether a state ban on assisted suicide could be applied to doctor assisted suicide of a person with a terminal prognosis.  As Carman reports it, the case was “dismissed by the state Superior Court in 2010. In its ruling, the court said, ‘taking one’s life even for a sympathetic reason is suicide’ and therefore physician immunity from prosecution does not apply.”  The actual reasoning of the Connecticut court has quite a bit more substance, including a discussion of why the legislature is the better venue for evaluating a policy change like assisted suicide:

Legislative determination is particularly important given the significant medical legal and ethical concerns about legalized physician assisted suicide that have been raised across the country. Among the other difficult and important public policy concerns that the legislature would have to evaluate – and is uniquely positioned in our system of government to evaluate – are the following:

–           Whether physician-assisted suicide threatens the most vulnerable in society, including the poor, the elderly, and the disabled, who are at risk of being threatened, coerced, or influenced to end their lives to spare their families the financial costs and emotional strain of caring for them; …

–           Whether physician-assisted suicide shifts the focus of physicians and insurers away from vitally important measures such as identifying and treating depression and providing end-of-life pain control and palliative care; . . .
–           Whether physician-assisted suicide undermines the physician-patient relationship and the integrity of the medical profession by eroding patient trust in the doctor’s role as healer;…

–           Whether physician-assisted suicide opens the door to the possibility of involuntary euthanasia, as has occurred in the Netherlands, because “what is couched as a limited right to ‘physician-assisted suicide’ is likely, in effect, a much broader license which could prove extremely difficult to police and contain,” Washington v. Glucksberg, 521 U.S. 702, 733 (1997). (Blick Decision on Motion to Dismiss.)  

The New Mexico resident who wants the option of getting a doctor’s assistance to commit suicide reportedly says that “it’s important to remember that the only patients who would be allowed to obtain physician assistance in suicide would be those who are terminally ill and mentally competent.  ‘This is something the patient chooses and does for herself. It’s not the doctor doing it,’ she said.”

On a superficial level, that sounds good.  But what about people who are not terminally ill or depressed?  In reality, such persons, or indeed any suicidal person, could ask for doctor assisted suicide, but the doctor has to decide who is eligible for their assistance and who is not.  Assisted suicide laws like Oregon’s grant blanket legal immunity to the doctor’s decision to prescribe lethal drugs, along with immunity for any witnesses and other participants who are involved in the death. 

Carmen included a fair representation of some of the disability community’s concerns about assisted suicide.  One of the risks of such a law is that an heir or burdened care giver could take the ill individual to the doctor to request assisted suicide, be a witness to the signature, pick up the prescription and, once the pills are in the home, administer the lethal dose with or without the person’s consent.  With no independent witness required at the time of death, who would know?

The New Mexico plaintiffs are all people who seem privileged enough to be justified in their confidence that the patient in this case will not be coerced into assisted suicide, will not be denied care that she wants, will not be treated like an unwanted burden on those around her, and is not at risk of being administered the lethal drugs without her consent.

It would be nice if everyone with a difficult illness could have the same confidence.  But in the real world, where elder abuse is on the rise, C&C’s platitudes should not distract us from our collective obligation to consider the impact on everyone, not just the privileged few. – Diane Coleman

Coleman and Drake in Hastings Center ‘Bioethics Forum’ – Bill Peace, Bioethics, and Being Pushed to Choose Death

Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive health crisis when he experienced a stage IV skin breakdown – with a long treatment process that was physically and emotionally grueling by his own accounts.

While Bill was hospitalized – and at one of his lowest points healthwise – he was subjected to a late night visit by a hospitalist.  Laying out a grim set of possible outcomes for Bill’s health crisis, the doctor seemed to be urging Bill to just discontinue antibiotics and let himself be given palliative care to be pain-free until the infection took him.

Earlier this year, The Hastings Center Report published Bill’s account of the visit and some resulting reflections on medicine, hospitals, and disability.  That’s the context for the essay coauthored by Diane Coleman and myself (Stephen Drake) on the Hastings Center Bioethics Forum.   Below is the intro to the commentary on Bill Peace’s published article:

A powerful essay in the July-August Hastings Center Report describes a chilling encounter between a physician and a seriously ill disabled patient.  The author, William J. Peace, who has been paralyzed from the waist down since 1978, was hospitalized two years ago with a large, grossly infected stage four wound. While he had no illusions about the gravity of his condition – he would be bedbound for at least six months, dependent on others, and saddled with staggering unreimbursed medical bills – he was unprepared for what a hospital physician said to him.  “He informed me I had the right to forego any medication, including the lifesaving antibiotics,” Peace writes. “Although not explicitly stated, the message was loud and clear. I can help you die peacefully.”

Peace concludes that his experience was not an isolated case, but instead was evidence of pervasive discrimination against people with disabilities. “Many people – the physician I met that fateful night included – assume disability is a fate worse than death,” he writes.

Was Peace’s experience unique? Is his assessment accurate? We invited commentaries from leaders in disability rights scholarship and advocacy and a physician recognized for exemplary care of patients at the end of life. Commentaries will appear over the next week or so, with response from Peace. We welcome comments and additional posts from readers. Here is the first commentary, by Diane Coleman and Stephen Drake, of Not Dead Yet.

Here is the opening to the essay/response Diane and I wrote:

It’s difficult for us to believe that Bill Peace’s story would really surprise anyone entrenched in bioethics and “end of life” issues. Anyone paying close attention to various news stories and occasional journal articles would be pretty sure there are more stories – some arguably worse – just waiting to be told. For a story, of course, you need a survivor who is able and willing to tell it. And of course, the storyteller needs a venue – we owe Bill Peace and The Hastings Center our thanks for making those elements come together.

The most surprising thing about Bill Peace’s article concerning his experience with the hospitalist is that it appeared in a bioethics journal at all. The second surprising aspect of his experience is that we’re having a publicly accessible discussion about it. The many ways that medical professionals push disabled people toward death are absent from journals – or masked in jargon and euphemisms. Subjects like Bill Peace’s story are certainly absent in venues in which bioethicists engage the public – as though there are discussions that the professional class would prefer we (the public) not be a part of. Recently, however, the wall of silence shows signs of cracking.

The intro and our essay are both available at ‘Comfort Care as Denial of Personhood‘ (a title that I still can’t quite wrap my head around in terms of relevance).

Comments/reactions to our essay (and others to follow) are encouraged, but you have to register – which is a free and relatively painless process.

Thanks to Rachel – her comment and others to appear later – for alerting me to the fact that Bill Peace’s article is accessible in html.  You can use this link to access the article.

Montreal Gazette: NDY Board Chair Amy Hasbrouck Responds to BC Supreme Court Endorsement of Assisted Suicide in Op-Ed

Today, July 10, the Montreal Gazette published an op-ed by Not Dead Yet board chair Amy Hasbrouck.  This op-ed is a response to the British Columbia Supreme Court decision that created a broad ‘right’ to suicide assistance.  See below for a link to this excellent essay, along with an excerpt:

How about the right to cry for help?

court ruling asserting a person’s right to assisted suicide reflects discriminatory attitudes toward the disabled

 By Amy E. Hasbrouck
(Excerpt)

Justice Smith doesn’t appear to believe that people with disabilities and terminal illness are ever coerced, persuaded, bullied, tricked or otherwise induced to end our lives prematurely. She believes those researchers who contend there have been no problems in jurisdictions where assisted suicide is legal, and she rejects evidence suggesting there have been problems.

She writes: “It is unethical to refuse to relieve the suffering of a patient who requests and requires such relief, simply in order to protect other hypothetical patients from hypothetical harm.”

I’ll have to mention that to some of my hypothetical friends who say they have been pressured by doctors, nurses and social workers to hypothetically “pull the plug.”

The same goes for all those folks who succumbed to the pressure; I guess they’re only hypothetically dead.

Read the rest of this excellent response at the Montreal Gazette.