Minneapolis Star Tribune Publishes John Kelly’s Excellent Letter

ASSISTED SUICIDE
What can seem like dignity can turn out to be anything but

I sympathize with Bobbi Jacobsen (“I have ALS, and I hope for a dignified death,” Opinion Exchange, Sept. 24). Like her, I became severely disabled as an adult. But I oppose assisted suicide: It’s too dangerous.

John Kelly, white man with short hair, plaid shirt, wire rim glasses, sip-and-puff switch to operate wheelchair.

Assisted suicide can look appealing from an individual’s perspective, but at the state level, it inevitably leads to the premature deaths of non-dying people. At least 12% to 15% of people judged terminal outlive their six-month prognosis, according to the Journal of Palliative Medicine, sometimes by years and decades. Actress Valerie Harper, who died last month, lived six years longer than predicted. Tragically, there are people who would be alive today but for their misplaced trust in a doctor’s prediction.

Jacobsen cites the absence of disability abuse reports from state protection and advocacy agencies, but abuse gets easily buried. For example, Oregonian Wendy Melcher’s death in 2007 at the hands of two nurses was suppressed by the state nursing board.

Elder abuse is rampant. Safeguards end after drugs get dispensed and, because no witness is required, heirs and abusers can engineer deaths without worry.

As the cheapest “treatment” for serious illness, assisted suicide fattens insurers’ profits and crowds out traditional, more expensive treatment.

Palliative care doctors know how to let people die gently, so it’s inexcusable that anyone die in uncontrolled pain. Everyone has the right to reject any treatment, including food and water, and palliative sedation is available as a last resort.

The Minnesota Legislature should demand excellent palliative care, not put everyone in danger of premature death due to mistakes, abuse and insurers’ bottom lines.

JOHN B. KELLY, BOSTON

The writer works for Not Dead Yet, an organization opposed to assisted suicide.

Announcing Webinar!: Disability Rights Opposition To Assisted Suicide Laws

Announcing!

Webinar: Disability Rights Opposition
To Assisted Suicide Laws

Wednesday, October 30, 2019, 3:00-4:30 pm Eastern

REGISTER HERE!

What Will You Gain By Attending:

  • Familiarity with the key issues, arguments and common questions
  • Materials that explain, detail, and document individual cases of assisted suicide problems and abuses
  • Understanding what disability has to do with assisted suicide

Speakers:

  • Anita Cameron, Director of Minority Outreach, Not Dead Yet
  • Diane Coleman, President/CEO, Not Dead Yet
  • Marilyn Golden, Senior Policy Analyst, Disability Rights Education & Defense Fund
  • John Kelly, Director, Second Thoughts Massachusetts

Topics Include:

  • What is Assisted Suicide?
  • What’s disability got to do with it?
  • Deadly mix between assisted suicide & pressures to cut healthcare costs
  • Elder and disability abuse; effects on other constituencies
  • Palliative care and palliative sedation can address pain
  • Failure of so-called “safeguards”
  • Minimal data and fatally flawed oversight, no investigation of abuse
  • Suicide contagion
  • What’s happening in Canada and other countries?
  • Take action!

REGISTER HERE

For More Information: mgolden@dredf.org

NDY Urges USCIS To Reverse Policies That Kill Ill and Disabled Immigrant Children

Not Dead Yet, the Resistance

NDY Urges USCIS To Reverse Policies That Kill Ill and Disabled Immigrant Children

Last month, U.S. officials took another step against immigrant people by ending adjudication of “deferred action” requests. These requests temporarily prevent the deportation of vulnerable individuals and families who face compelling, and often life-threatening, circumstances. Many applicants for deferred action are children with severe medical conditions like cancer, cystic fibrosis, and epilepsy. These policies also especially target Black and Brown immigrant children.

U.S. Citizenship and Immigration Services (USCIS) is an agency of the U.S. Department of Homeland Security that administers the country’s naturalization and immigration system. As of August 7, 2019, USCIS is no longer accepting or addressing non-military deferred action requests received at field offices after that date.

As the American Immigration Lawyers Association has explained:

  • This change could result in many children’s deportation to countries in which they would lack access to essential medical treatment—treatment that makes the difference between life and death.
  • Other vulnerable individuals precluded from deferred action due to this change could face long-term or permanent separation from loved ones, making this measure a de facto family separation policy.
  • Indeed, USCIS’s shift in policy could compel families made up of noncitizen parents and sick U.S. citizen children to choose either: (1) family separation; or (2) family unity in countries lacking vital medical care— effectively, a choice between family separation and death.

Under public pressure, USCIS announced that it would re-open denied deferred action requests that were already pending as of August 7, but that is simply not enough to protect many of the lives at risk going forward. The only solution is to fully restore USICS’s deferred action adjudications.

USCIS changed its policy without any advance public notice, endangering terminally ill kids whose lives hang in the balance and other vulnerable individuals who must face the prospect of being separated from loved ones. This is worse than unacceptable – it is nothing short of horrific!

Not Dead Yet is a national disability rights group with sister organizations in Canada, the United Kingdom and New Zealand. We oppose the legalization of assisted suicide and euthanasia as deadly forms of discrimination against old, ill and disabled people. These USCIS policies show similar contempt for the value of our lives, and must be reversed.

[This Statement was submitted to the House Subcommittee on Civil Rights and Civil Liberties which  will hold a hearing entitled “The Administration’s Apparent Revocation of Medical Deferred Action for Critically Ill Children” at 12PM on Wednesday, September 11, 2019.]

NDY insta a USCIS a revertir las políticas que matan a niños inmigrantes enfermos y con discapacidad

Not Dead Yet, the Resistance

NDY insta a USCIS a revertir las políticas que matan a niños inmigrantes enfermos y con discapacidad

El mes pasado, los funcionarios estadounidenses dieron otro paso contra las personas inmigrantes al finalizar la adjudicación de las solicitudes de “acción diferida”. Estas solicitudes evitan temporalmente la deportación de individuos y familias vulnerables que enfrentan circunstancias convincentes, y a menudo potencialmente mortales. Muchos solicitantes de acción diferida son niños con afecciones médicas graves como cáncer, fibrosis quística y epilepsia. Estas políticas también se dirigen especialmente a los niños inmigrantes negros y mestizos.

El Servicio de Ciudadanía e Inmigración de EE. UU. (USCIS) es una agencia del Departamento de Seguridad Nacional de EE. UU. Que administra el sistema de naturalización e inmigración del país. A partir del 7 de agosto de 2019, USCIS ya no acepta ni atiende solicitudes de acción diferida no militar recibidas en las oficinas de campo después de esa fecha.

Como explicó la Asociación Americana de Abogados de Inmigración:

  • Este cambio podría resultar en la deportación de muchos niños a países en los que no tendrían acceso a un tratamiento médico esencial, un tratamiento que marca la diferencia entre la vida y la muerte.
  • Otros individuos vulnerables excluidos de la acción diferida debido a este cambio podrían enfrentar una separación a largo plazo o permanente de sus seres queridos, lo que hace que esta medida sea una política de separación familiar de facto.
  • De hecho, el cambio en la política de USCIS podría obligar a las familias formadas por padres no ciudadanos y niños enfermos de ciudadanos estadounidenses a elegir: (1) separación familiar; o (2) unidad familiar en países que carecen de atención médica vital, efectivamente, una elección entre la separación familiar y la muerte.

Bajo presión pública, el USCIS anunció que volvería a abrir solicitudes de acción diferida denegadas que ya estaban pendientes al 7 de agosto, pero eso simplemente no es suficiente para proteger muchas de las vidas en riesgo en el futuro. La única solución es restaurar completamente las adjudicaciones de acción diferida de USICS.

USCIS cambió su política sin previo aviso público, poniendo en peligro a los niños con enfermedades terminales cuyas vidas están en juego y otras personas vulnerables que deben enfrentar la posibilidad de ser separados de sus seres queridos. Esto es peor que inaceptable: ¡es horrible!

Not Dead Yet es un grupo nacional de derechos de discapacidad con organizaciones hermanas en Canadá, el Reino Unido y Nueva Zelanda. Nos oponemos a la legalización del suicidio asistido y la eutanasia como formas mortales de discriminación contra las personas mayores, enfermas y con discapacidad. Estas políticas de USCIS muestran un desprecio similar por el valor de nuestras vidas y deben revertirse.

Lydia Nunez Landry and Germaine Martin Join NDY Board of Directors

Not Dead Yet is pleased to announce that Lydia Nunez Landry and Germaine Martin have joined our Board of Directors. Ms. Martin lived in a nursing facility in Ohio and successfully advocated to free herself. Ms. Landry has served as a nursing facility ombudsperson in Texas. Both women have assisted others dealing with abuse and unwanted confinement in these institutions. “We’re honored that these two women have agreed to serve on our board and provide their insights and perspectives on the real concerns facing so many people with disabilities, advanced chronic conditions and terminal illnesses,” said Diane Coleman, President and CEO.

Lydia Nunez Landry, a dark haired light-skinned woman with glasses, wearing a black blouse, black and white sweater, and a multicolored skirt, seated in a wheelchair with the backrest draped in purple.

Lydia Nunez Landry is a disability rights advocate living in Houston, Texas. Her advocacy work centers on the rights and safety of institutionalized disabled and older people. Serving as a certified volunteer long-term care ombudsman, Lydia is witness to the often devastating effects caused by segregation in nursing homes. Lydia graduated magna cum laude from University of Houston-Clear Lake with a degree in social work—her activism draws on years of study in disability, critical race, queer, and feminist theories and how they relate in various ways to economic inequality. As a disabled mother of two, Lydia champions the rights of disabled parents and those who want to be parents. She is also a member of ADAPT, assisting with social media outreach, disability rights education, and political action in the Houston area. Lydia was born and raised in rural Louisiana along the Gulf Coast and volunteered in various capacities after hurricanes Katrina, Rita, Ike, and Harvey, most recently by helping to coordinate rescues and the delivery of vital medicine, food, and water to those stranded by encroaching waters.

Germaine Martin, an African American non-binary female with short curly black hair, smiling at the camera, and wearing a bright pink shirt with a collar and four horizontal black stripes.

Germaine Martin is a Black non-binary female lesbian and has multiple disabilities. She has a BA in political science, and minored in mathematics. She started the first Disabled Student Union at Wright State University, and was involved in student government. She also served as Vice President on the council of her apartment building at Wright State. Germaine taught computer skills to people with disabilities at United Rehabilitation. She was later trapped in a nursing home for four years and fought to get herself out till she succeeded. She has continued to fight for home and community based services and assist others to get out of institutional settings.

We welcome both of these great disability advocates to the Not Dead Yet Board!