Tag Archives: Health care decision making

Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability

better dead than disabled, Health care decision-making, health disparities, HHS, informed consent, life-sustaining treatment, Lisa Blumberg, medical discrimination, Our News & Commentary Blog, treatment withdrawal, , ,

The updating of the 504 Regulations by the Department of Health and Human Services under the Biden-Harris administration is historic. Various provisions included in the amendment interact and work together to promote equal access to healthcare for persons with disabilities. Not Dead Yet’s response to the  Department’s request for public comment when the updates were … Continue reading Lisa Blumberg: The 504 Regulations Now Explicitly Prohibit Healthcare Discrimination Based on Disability →

ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man

ADAPT, bioethics, brain injury, COVID-19, ethics committee, futility, medical discrimination, Our News & Commentary Blog, protests, , , ,

ADAPT of Texas members protested on June 28th in front of St. David’s Hospital in Austin where they refused treatment and starved to death Michael Hickson, a black disabled man who died on June 11th, 2020. ADAPT of Texas reported that Michael Hickson was a quadriplegic with a brain injury who was refused treatment for … Continue reading ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man →

Update: Minnesota Hospital Agrees to Continue Oxygen for Catie

futile care, futility, Health care decision-making, life-sustaining treatment, Minnesota, Our News & Commentary Blog, treatment withdrawal, , ,

Good news! Following intervention by attorneys, the Minnesota hospital that we previously reported had planned to stop providing oxygen to a woman with lung cancer decided to follow her wishes to continue treatment. This goes to show, as so many people with disabilities have experienced, that when there’s a power imbalance operating against you, get legal/advocate … Continue reading Update: Minnesota Hospital Agrees to Continue Oxygen for Catie →

Supplementing Your Advance Directive With A Video

"end of life", advance directives, Dr. Ferdinando Mirarchi, Health care decision-making, life-sustaining treatment, Live On!, Our News & Commentary Blog, POLST,

Kaiser Health News recently carried an article encouraging people to create videos to help explain what’s in their advance directives, which are often overly complex legal boilerplate or overly simplistic checkbox forms. One thing I like about the article, Straight From The Patient’s Mouth: Videos Can Clearly State Your End-Of-Life Wishes, is the discussion of … Continue reading Supplementing Your Advance Directive With A Video →

Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?

bioethics, court cases, ethics, futility, Health care decision-making, Lisa Blumberg, Our News & Commentary Blog, Peter Singer, surrogate decision making, treatment withdrawal, United Kingdom, ,

The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case? →