Category Archives: bioethics

Bill Peace: A Professor Who Professed Disability Activism

By now, many who read this message will know that Bill Peace died not long after midnight this morning. In the hours since, the outpouring of both grief over our loss and celebration of his life is nothing short of incredible. He has been one of an increasingly rare breed of academics who embrace disability … Continue reading Bill Peace: A Professor Who Professed Disability Activism

Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?

The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Denounce Lethal Anti-Disability Healthcare Policy Advocated by Peter Singer (Change.org)

As many readers are probably aware, news broke last week that Princeton bioethicist Peter Singer had once again pushed the envelope on his decades-long assault on the value and lives of disabled people.  In remarks broadcast live, Singer asserted that both government healthcare and private insurance can and should deny and/or limit healthcare to people … Continue reading Denounce Lethal Anti-Disability Healthcare Policy Advocated by Peter Singer (Change.org)

Bioethicist Art Caplan Posts Sloppy, Confused and Inaccurate Mess About Assisted Suicide on Medscape

Art Caplan can be frustrating.  He’s been everywhere in the media as the number 1 face and voice of bioethics here in the USA. He’s frustrating because his comments and analyses regarding bioethical issues vary in their quality and even accuracy.  I think that part of that is due to the fact that part of … Continue reading Bioethicist Art Caplan Posts Sloppy, Confused and Inaccurate Mess About Assisted Suicide on Medscape