Category Archives: bioethics

Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

November 17, 2019bioethics, devaluation, healthcare rationing, medical discrimination, national council on disability, Our News & Commentary Blog, qaly, Quality Adjusted Life Yearsbioethics, National Council on Disability, QALYsDiane Coleman

The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities →

Federal study finds assisted suicide laws rife with dangers to people with disabilities

October 9, 2019"death with dignity", aid in dying, assisted suicide, bioethics, dredf, national council on disability, Our News & Commentary Blogaid in dying, assisted suicide, bioethics, death with dignity, Dredf, National Council on DisabilityDiane Coleman

The National Council on Disability (NCD) has issued the second in a series of reports on Bioethics and Disability. NCD’s release on the report today focuses on “a federal examination of the country’s assisted suicide laws and their effect on people with disabilities, finding the laws’ safeguards are ineffective and oversight of abuses and mistakes … Continue reading Federal study finds assisted suicide laws rife with dangers to people with disabilities →

Bill Peace: A Professor Who Professed Disability Activism

July 2, 2019ableism, activism, assisted suicide, bill peace, bioethics, Our News & Commentary Blogassisted suicide, bill peace, bioethicsDiane Coleman

By now, many who read this message will know that Bill Peace died not long after midnight this morning. In the hours since, the outpouring of both grief over our loss and celebration of his life is nothing short of incredible. He has been one of an increasingly rare breed of academics who embrace disability … Continue reading Bill Peace: A Professor Who Professed Disability Activism →

Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?

July 26, 2017bioethics, court cases, ethics, futility, Health care decision-making, Lisa Blumberg, Our News & Commentary Blog, Peter Singer, surrogate decision making, treatment withdrawal, United Kingdombioethics, Health care decision making, Lisa BlumbergDiane Coleman

The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case? →

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

May 3, 2015bioethics, cost containment, daly, devaluation, medical bigotry, medical discrimination, Medicare, Our News & Commentary Blog, qalyNot Dead Yet, Partnership to Improve Patient Care, Secretary Sylvia Burwell, ValueBased Payment SystemsDiane Coleman

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems →