Category Archives: DNR

Lisa Blumberg: A Classic Case of Lethal Denial of Medical Treatment Based On Disability

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Trisomy 18 is a genetic condition that usually results in physical health problems and cognitive limitations. Life expectancy is currently shorter than typical but people can live into their 20’s and 30’s and one American with trisomy 18, Megan Hayes, celebrated her fortieth birthday with fanfare. Unfortunately, it seems that this information has been slow … Continue reading Lisa Blumberg: A Classic Case of Lethal Denial of Medical Treatment Based On Disability →

Lisa Blumberg: Getting Beyond Advance Medical Directives

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For years, advance medical directives, popularly known as living wills, have been promoted as giving people control over what happens to them at “end of life”, i.e., when they are in dire medical straits. (1)  It is hard to disagree with the concept. Certainly, people have the right to refuse treatment they don’t find helpful … Continue reading Lisa Blumberg: Getting Beyond Advance Medical Directives →

Carol Cleigh Sutton – DNR: Choice or Medical Murder?

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A friend asked if I knew how many people have been medically killed since Covid-19. My answer is that there is no way to know. We know about Michael Hickson and  we’re just learning about Sarah McSweeney and perhaps many others from a recent NPR investigation.  However, when relatives agree, or at least don’t vociferously … Continue reading Carol Cleigh Sutton – DNR: Choice or Medical Murder? →

NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning

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The New York Department of Health recently requested public input from health care providers and patients on how to make advance care planning forms more understandable and easy to use. The Department provided a response template with questions focused on people’s experiences with three forms: the health care proxy, out-of-hospital do not resuscitate order (DNR) … Continue reading NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning →

DREDF’s Marilyn Golden Provides High Powered Public Comments to IOM Transforming End-of-Life Care Committee

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The second of six expected meetings of the Institute of Medicine Transforming End-of-Life Care Committee was held on May 29 at the Stanford University School of Medicine in Stanford, California.  The topics addressed by the Committee include health care and long term services and supports issues facing people with chronic conditions and disabilities who may … Continue reading DREDF’s Marilyn Golden Provides High Powered Public Comments to IOM Transforming End-of-Life Care Committee →