As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive health crisis when he experienced a stage IV skin breakdown – with a long treatment process that was physically an…
…tant in helping him in his work as his strengths. Stephen made his own self-diagnosis as a grad student in Special Education. Since 1998, he’s worked as a disability activist, engaged in public debate, organizing protests, analyzing public policy and other duties related to his position as a research analyst for a national disability rights group. He’s found that his obvious strengths help him immensely on the job, but so do some areas that starte…
…me, the tube blocked so I went to the emergency room. The two young Harvard-trained doctors must have asked me four times about what kind of surgically-altered bladder I had. I was reduced to repeating, over and over, “I have a normal human bladder.” They were so ignorant about how to insert a new catheter that it fell out in the shower the next morning. Now one of my personal care assistance changes it without problem. A few years ago I was outsi…
…ents are available at http://notdeadyet.org/not-dead-yets-public-comment-to-u-s-dept-of-health-and-human-services-on-affordable-care-acts-nondiscrimination-regulations . Response to Question 6: Again, please see public comments on the nondiscrimination regulations under the Affordable Care Act. These comments are available at http://notdeadyet.org/not-dead-yets-public-comment-to-u-s-dept-of-health-and-human-services-on-affordable-care-acts-nondisc…
…view on Not Dead Yet (Voice of America, 09/04/18) Belgium Euthanizing 9, 11-Y-O Children: Report (Christian Post, 08/13/18) Advocates for Disabled Warn Against AMA’s Softening Opposition to Physician-Assisted Suicide (Daily Signal, 06/14/18) We’re told we are a burden. No wonder disabled people fear assisted suicide (Guardian, 06/01/18) Terminally ill New Yorkers cannot get help from doctors when they want to die (Altamont Enterprise, 05/24/18) Un…
