Category Archives: organ donation

Four Years After His Death, Disabled 8-Year-Old’s Death in Organ Donation is Under Investigation

The LA Times is reporting that the  death of a disabled 8-year-old boy in 2013 is currently under investigation by Los Angeles police and the DA office. Back in 2013, Cole Hartman’s father found his son with his head submerged in their washing machine. Cole went into cardiac arrest, but paramedics were able to resuscitate him. … Continue reading Four Years After His Death, Disabled 8-Year-Old’s Death in Organ Donation is Under Investigation

Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

Summary:  Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The … Continue reading Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families

There’s a potentially explosive lawsuit that’s gotten limited coverage so far.  As near as I can tell, the first story on it was published in the New York Post on September 26 of this year.  Here’s an excerpt from the news story in the Post: The New York Organ Donor Network pressured hospital staffers to … Continue reading NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation.  Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report … Continue reading Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

Update on Amelia (Philadelphia Transplant Denial) With Welcome News

I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome.  Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys.  They were told by the transplant surgeon that her … Continue reading Update on Amelia (Philadelphia Transplant Denial) With Welcome News