Category Archives: organ donation

NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases”

Lisa Blumberg, organ donation, Organ Procurement and Transplantation Network, organ transplants, Our News & Commentary Blog,

This is a complicated subject. It impacts people with disabilities in multiple ways, both as organ donors and recipients. But the tone and recommendations of the proposal by the Ethics Committee of the Organ Procurement and Transplantation Network needed a response. Some excerpts follow. The organ transplant program saves lives, including some of our organization’s … Continue reading NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases” →

Four Years After His Death, Disabled 8-Year-Old’s Death in Organ Donation is Under Investigation

brain death, brain injury, dcd, donation after cardiac death, medical discrimination, medical killings, organ donation, Our News & Commentary Blog, , , ,

The LA Times is reporting that the  death of a disabled 8-year-old boy in 2013 is currently under investigation by Los Angeles police and the DA office. Back in 2013, Cole Hartman’s father found his son with his head submerged in their washing machine. Cole went into cardiac arrest, but paramedics were able to resuscitate him. … Continue reading Four Years After His Death, Disabled 8-Year-Old’s Death in Organ Donation is Under Investigation →

Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living

brain injury, donation after cardiac death, HHS, Institute of Medicine, life-sustaining treatment, OPTN, organ donation, Organ Procurement and Transplantation Network, Our News & Commentary Blog, Press Releases, Second Thoughts, United Network on Organ Sharing

Summary:  Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The … Continue reading Press Release: Not Dead Yet Urges Secretary Sebelius and Organ Procurement and Transplantation Network to Prohibit Organ Procurers from Pressuring Sick or Injured to Give Up on Living →

NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families

brain death, brain injury, litigation, New York Organ Donor Network, organ donation, organ transplants, Our News & Commentary Blog, rush to judgment

There’s a potentially explosive lawsuit that’s gotten limited coverage so far.  As near as I can tell, the first story on it was published in the New York Post on September 26 of this year.  Here’s an excerpt from the news story in the Post: The New York Organ Donor Network pressured hospital staffers to … Continue reading NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families →

Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS

ari ne'eman, Autistic Self-Advocacy Network, disabilityscoop, discrimination, HHS, national council on independent living, national disability leadership alliance, organ donation, organ transplants, Our News & Commentary Blog

On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation.  Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report … Continue reading Disabilityscoop fails to get the real scoop – Disability, organ transplantation and the HHS →