Category Archives: organ transplants

NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases”

This is a complicated subject. It impacts people with disabilities in multiple ways, both as organ donors and recipients. But the tone and recommendations of the proposal by the Ethics Committee of the Organ Procurement and Transplantation Network needed a response. Some excerpts follow. The organ transplant program saves lives, including some of our organization’s … Continue reading NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases”

John Kelly Testifies for ASAN Bill in MA Prohibiting Disability Discrimination in Organ Transplant Eligibility

On October 20, John Kelly submitted testimony on behalf of Second Thoughts Massachusetts and Not Dead Yet in support of H 3271, “An Act concerning nondiscrimination in access to organ transplantation.” Not Dead Yet is proud to follow the leadership of the Autistic Self Advocacy Network (ASAN) on this issue. Lydia Brown of the Boston … Continue reading John Kelly Testifies for ASAN Bill in MA Prohibiting Disability Discrimination in Organ Transplant Eligibility

Pallimed Blogger Doc Not Happy with Organ Procurement Proposals

Christian Sinclair, a palliative care and hospice physician who writes on the Pallimed blog, caught the NPR story on the Organ Procurement and Transplantation Network/United Network for Organ Sharing (OPTN/UNOS) meeting earlier this week to issue new sweeping rules on “Donation after Cardiac Death.” Good news, for now, BTW.  We have been informed that the … Continue reading Pallimed Blogger Doc Not Happy with Organ Procurement Proposals

NPR’s Morning Edition Covers the Organ Procurement Debate

NPR’s Morning Edition included a segment on the policy debate regarding organ procurement taking place June 24 and 25 at the Board meeting of the Organ Procurement and Transplantation Network/United Network for Organ Sharing (OPTN/UNOS) in Richmond, Virginia.  Not Dead Yet issued a press release on this subject last week: Not Dead Yet Urges Secretary Sebelius … Continue reading NPR’s Morning Edition Covers the Organ Procurement Debate

NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families

There’s a potentially explosive lawsuit that’s gotten limited coverage so far.  As near as I can tell, the first story on it was published in the New York Post on September 26 of this year.  Here’s an excerpt from the news story in the Post: The New York Organ Donor Network pressured hospital staffers to … Continue reading NY Lawsuit Claims Organ Donor Network Engaged in ‘Shameful Practices,’ Pressuring Staff and Families