Category Archives: Quality Adjusted Life Years

NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations

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Not Dead Yet has joined many disability organizations in applauding the U.S. Dept. of Health and Human Services (HHS) Office for Civil Rights for proposing critically needed rules to update and amend its Section 504 regulations in the area of healthcare. NDY’s public comment focuses primarily on the Department’s questions concerning medical treatment (Section 84.56), … Continue reading NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations →

Matt Valliere On the Many Harms of Medical Quality of Life Judgments

"death with dignity", ableism, assisted suicide, better dead than disabled, COVID-19, healthcare rationing, lifeboat ethics, Matt Valliere, Me Before You, medical discrimination, Michael Hickson, million dollar baby, Newsweek, op-ed, Our News & Commentary Blog, Patients Rights Action Fund, qaly, Quality Adjusted Life Years, quality of life judgments, treatment withdrawal, , , ,

On November 2, Newsweek published an excellent op-ed by Matt Valliere, Executive Director of the Patients Rights Action Fund (PRAF), entitled The Brutal, Tragic, Consequences of Quality of Life Judgements. Though PRAF’s mission is focused on opposing assisted suicide laws, the op-ed does an uncommonly good job discussing other discriminatory and harmful medical practices that … Continue reading Matt Valliere On the Many Harms of Medical Quality of Life Judgments →

NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues

"death with dignity", access to health care, aid in dying, assisted suicide, futility, healthcare rationing, life-sustaining treatment, medical discrimination, national council on independent living, Our News & Commentary Blog, Quality Adjusted Life Years, treatment withholding, , , ,

As July 26, the 31st Anniversary of the Americans With Disabilities Act, approaches, the National Council on Independent Living is holding its annual conference. NCIL has announced that its annual Advocacy Priorities Guide is now available, containing “specific information on the national legislative and policy priorities identified biannually by the NCIL membership.” NCIL’s Healthcare priorities include … Continue reading NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues →

NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures

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The American Association of People with Disabilities issued the following press release announcing the more than 80 organizations that signed a letter calling on policymakers to reject health policies that discriminate. NDY’s President/CEO was quoted in the release below. The letter is in pdf and text formats, here and here, respectively. Advocates for People with Disabilities, … Continue reading NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures →

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

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Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination →