Category Archives: Quality Adjusted Life Years

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

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Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination →

NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

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At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles →

Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

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The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release                              … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities →

NDY Demands Prohibition On Use of QALYs To Limit Health Coverage

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Not Dead Yet is deeply concerned by the New York Legislature’s failure to protect people with disabilities from discrimination in the budget passed this week.  Despite widespread criticism from the disability community, the Legislature incorporated language in the budget authorizing the state to use third party assessments, including those relying on the discriminatory and harmful Quality Adjusted Life … Continue reading NDY Demands Prohibition On Use of QALYs To Limit Health Coverage →