I’m happy to share an update on a story we covered earlier this year – about a young girl – Amelia – who has Wolf-Hirschhorn syndrome. Back in January, her mother wrote about an awful meeting at the Children’s Hospital of Philadelphia about Amelia’s failing kidneys. They were told by the transplant surgeon that her … Continue reading Update on Amelia (Philadelphia Transplant Denial) With Welcome News
There’s an interesting new response to Bill Peace’s essay in the Hastings Center Report in which Bill described a very disturbing late-night visit by a physician while Bill was hospitalized for care and complications relating to a stage IV skin breakdown. An excerpt has been posted as a comment on Bill’s response to invited reactions … Continue reading New Bill Peace-Related Response – ‘Who would want a child like that?’
As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive … Continue reading Bill Peace’s Hastings Center Article (on a disturbing hospital experience) and Three Commentaries Are All Online
Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive health crisis when he experienced a stage IV skin breakdown – with a long treatment process that was physically and emotionally grueling by his own accounts. While Bill was hospitalized – and at one of his lowest points healthwise – he … Continue reading Coleman and Drake in Hastings Center ‘Bioethics Forum’ – Bill Peace, Bioethics, and Being Pushed to Choose Death
Recently, Diane Coleman wrote about new proposals to increase the pool of donor organs, and that have particularly disturbing ramifications in terms of the care and treatment of newly disabled individuals. We already know that organ transplant teams are more than willing to obtain organs from individuals with long-term disabilities, as highlighted by the case … Continue reading Philadelphia: Young Girl Being Denied Transplant Because Her “Retardation” Doesn’t Make Her “Worthy”
