Category Archives: daly

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Disability Health Disparities Based on Negative Quality of Life Judgments Must Be Challenged

While national disability organizations work hard to influence the federal budget debates, painful Medicaid cuts are already being considered and implemented at the state level across the country. Getting disability advocates and issues to the table is a major challenge. The Executive Director of the Center for Independence of the Disabled in New York just … Continue reading Disability Health Disparities Based on Negative Quality of Life Judgments Must Be Challenged