Category Archives: futile care

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

The National Council on Disability (NCD) “is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of fifteen Presidential appointees , an Executive Director appointed by the Chairman, and eleven, full-time professional staff.” … Continue reading NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

Important Legal Victory for People Under Guardianship in Pennsylvania

Last month, there was an important legal victory for people under guardianship in Pennsylvania.  The Supreme Court of Pennsylvania issued its ruling in the matter of D.L.H.  This appeal was made by the guardians of a man with developmental disabilities.  As reported in this 2009 blog entry, a lower court severely limited a guardian’s power … Continue reading Important Legal Victory for People Under Guardianship in Pennsylvania

NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY

I just received this in my news feed.  Taunya English at WHYY aired a piece on the Appellate Court Ruling on Betancourt v. Trinitas.  The case involved the effort of Trinitas Regional Medical Center in New Jersey to remove treatment from a patient over the objections of the family.  Having lost in a trial court, … Continue reading NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY

New Jersey: More Coverage/Commentary on Betancourt Ruling

A later story by Sue Epstein has been published in the New Jersey Star-Ledger.  This article is a little more detailed than the first and includes a brief comment by Anne Studholme, who represented NDY and our co-amici. The Wall Street Journal also published an article about the decision, written by Suzanne Sataline.New Jersey Today … Continue reading New Jersey: More Coverage/Commentary on Betancourt Ruling