Category Archives: futility

NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

The National Council on Disability (NCD) “is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of fifteen Presidential appointees , an Executive Director appointed by the Chairman, and eleven, full-time professional staff.” … Continue reading NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

Why I Support the CRPD

This past week, the U.S. Senate voted to proceed with consideration of U.S.ratification of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  With a two-thirds majority required to move to the next step, the cloture vote was 61 to 36, with 3 not voting. Not Dead Yet has not yet formally … Continue reading Why I Support the CRPD

Diane Coleman’s Plenary Remarks at Adv. Care Planning and ‘End of Life’ Conference on May 31

Editor’s note: Diane’s plenary remarks included the use of PowerPoint slides. I don’t have access to these, but have included links in cases where people might want more information and/or verification.) Plenary Remarks at ACPEL Conference – May 31, 2012 I’d like to begin by presenting a CASE STUDY. It’s a true story, as told … Continue reading Diane Coleman’s Plenary Remarks at Adv. Care Planning and ‘End of Life’ Conference on May 31

Texas: Supporters of Texas “Futile Care” Law Continue to Maintain the Status Quo, Preventing Change

On Sunday (May 8, 2011), the Austin American-Statesman published an update of sorts on the continuing stalemate over the Texas “futile care statute,” which translates as a “win” for supporters of the status quo. It’s a fascinating article – for many reasons.  But perhaps the most fascinating are the many contradictions contained in the article … Continue reading Texas: Supporters of Texas “Futile Care” Law Continue to Maintain the Status Quo, Preventing Change

NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY

I just received this in my news feed.  Taunya English at WHYY aired a piece on the Appellate Court Ruling on Betancourt v. Trinitas.  The case involved the effort of Trinitas Regional Medical Center in New Jersey to remove treatment from a patient over the objections of the family.  Having lost in a trial court, … Continue reading NDY Attorney Anne Studholme discusses Betancourt Ruling on WHYY